First-ever rally focused on liver disease to bring together advocates, patients, researchers and others to focus on treatments, cures for oft-overlooked organ.
Washington, DC (PRWEB) October 23, 2013
Liver disease affects millions of men, women and children worldwide and its incidence rates are growing. Deaths from liver disease increased substantially from 1990 to 2010. Yet few people are aware of the enormous health and economic burden of liver disease, or that much is treatable and preventable.
For many of these diseases, very little progress is being made on detection, prevention or cures. Liver transplantation is challenging; hepatitis C treatment is expensive and difficult; too few livers are available for patients awaiting transplant, and few are aware that one in 10 Americans has liver disease.
A diverse group of professionals, patients and advocates are intent on raising awareness and increasing public attention to the growing worldwide burden of liver disease.
Their members will hold the 1st International Rally for Liver Disease Awareness on Friday, November 1 at the Long View Gallery (1234 9th Street, NW) in Washington, DC at noon. Attendees are invited to arrive at 11 a.m. for networking and viewing rally partner displays. After the rally, guests can enjoy a reception and refreshments from 1:30 to 3:00 p.m.
The goals of the Rally are to increase public attention to the growing worldwide burden of liver disease, and to create a global community of stakeholders that will accelerate progress in liver disease prevention, early detection, treatment and research.
The Liver Rally is co-chaired by Dr. Melanie Thomas, President of CanLiv, by Donna Cryer, J.D., a health advocate, liver patient and transplant recipient and by Ivonne Fuller, CEO, Hepatitis Foundation International. Moderated by Cryer, the rally will feature representatives from the National Institutes of Health (NIH), the U.S. Department of Health and Human Services, Pediatric Liver Center at Johns Hopkins Medical Center, Partners Seeking a Cure, Hepatitis Foundation International, National Viral Hepatitis Roundtable and CanLiv - The Hepatobiliary Cancers Foundation.
The Rally will be available to view online at https://new.livestream.com/CanLiv/liverrally. Members of the public are invited to attend, and show their support for this cause. To view the agenda, visit: http://liverdiseaserally.org/join-the-rally.html. Sponsorships and donations are welcome at http://liverdiseaserally.org/donate-now.html.
No comments:
Post a Comment